tag:blogger.com,1999:blog-4563136033538910586.post5618947556800092699..comments2024-01-02T22:19:02.318+03:00Comments on Paris Ankara Express: Portraits of Autism #10M and Shttp://www.blogger.com/profile/09990524219247428724noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-4563136033538910586.post-11738182966216527282010-10-12T13:30:41.386+03:002010-10-12T13:30:41.386+03:00@m2m Thank you! Thank you for your regular lovely ...@m2m Thank you! Thank you for your regular lovely comments. I do love it when comments make me feel that I'm doing something useful by writing these posts.Sandrinehttps://www.blogger.com/profile/10229404784641370601noreply@blogger.comtag:blogger.com,1999:blog-4563136033538910586.post-10491156340422956812010-10-12T13:29:35.657+03:002010-10-12T13:29:35.657+03:00@jencull - we're all going through this, aren&...@jencull - we're all going through this, aren't we. Both pity and the trivialising. It's infuriating sometimes but I have to balance it against the fact that so many of our friends and relatives have taken the trouble to become informed and give us plenty of support. Hopefully when our children are older they'll be able to speak for themselves and make things a bit clearer for the rest of the world.Sandrinehttps://www.blogger.com/profile/10229404784641370601noreply@blogger.comtag:blogger.com,1999:blog-4563136033538910586.post-89250960050165958872010-10-11T22:04:16.951+03:002010-10-11T22:04:16.951+03:00Another beautifully articulated, sensitive post ab...Another beautifully articulated, sensitive post about your experiences of autism. I am humbled. Truly.<br /><br />M2Mx<br /><br />ps you only need to look at the comments to see how important these musings are for many of your readers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4563136033538910586.post-28352797496943801612010-10-11T16:20:18.920+03:002010-10-11T16:20:18.920+03:00You have described my child and other peoples reac...You have described my child and other peoples reactions to him so well. I get cross when people dismiss the issues because like you say, some children will have some of the problems but they won't have ALL of them ALL the time (unless they are on the spectrum!). Jen@jencull (jen)http://www.thekingandeye.comnoreply@blogger.comtag:blogger.com,1999:blog-4563136033538910586.post-11490269132394489092010-10-09T17:32:11.477+03:002010-10-09T17:32:11.477+03:00Kebeni. Sounds like you've had a tough and lon...Kebeni. Sounds like you've had a tough and lonely time dealing with your son's issues. I really hope the assessment will give you some answers and a way forward. I know what you mean about walking on eggshells. There are times when you really don't want to trigger a meltdown! Good luck and let us know how things go.Sandrinehttps://www.blogger.com/profile/10229404784641370601noreply@blogger.comtag:blogger.com,1999:blog-4563136033538910586.post-72740022937860849222010-10-09T17:23:43.340+03:002010-10-09T17:23:43.340+03:00Kim, it made a big difference to us that our famil...Kim, it made a big difference to us that our family and friends knew something about autism, and actually went out and found out more. It took a lot of pressure off us to find out they already knew a lot of things and that they didn't mind doing their own research. Good luck to you and your daughter and your grand daughter!Sandrinehttps://www.blogger.com/profile/10229404784641370601noreply@blogger.comtag:blogger.com,1999:blog-4563136033538910586.post-8489760735458833522010-10-09T17:21:16.754+03:002010-10-09T17:21:16.754+03:00Thanks Jomica, that's really useful advice. Th...Thanks Jomica, that's really useful advice. Things are a lot easier now than they were even a year ago. We're seeing a lot of changes in Max as he grows up and we learn to help him better.Sandrinehttps://www.blogger.com/profile/10229404784641370601noreply@blogger.comtag:blogger.com,1999:blog-4563136033538910586.post-12845036706097202412010-10-09T04:01:21.715+03:002010-10-09T04:01:21.715+03:00i am sobbing. You have basically written a post a...i am sobbing. You have basically written a post about my boy. Well, apart from the potty training, he has been out of night nappies for almost a year and he is also 8.5yrs. Thank you, it does help to know that there are people out there who understand, who don't think you are 'babying' your child and letting them do what they want to do without discipline. Sometimes it is like walking on eggshells with Beren. We are going thru the rounds of assessment next month, but I have known from when he was a toddler that something was different. thank you and love and blessings to youKellihttps://www.blogger.com/profile/12427642925654042681noreply@blogger.comtag:blogger.com,1999:blog-4563136033538910586.post-87367506686437239682010-10-08T21:35:03.912+03:002010-10-08T21:35:03.912+03:00Hi, I came here from twitter. Thankyou for this po...Hi, I came here from twitter. Thankyou for this post. My 4 y/o grand daughter Amy has Aspergers. My Daughter is being very patient with me as I ask the same questions over and over, until all of Amy's realities sink in to my stubborn brain and I understand the challenges Amy is going to face.<br /><br />Posts like yours help me to readjust my thinking and take the pressure off my daughter a little bit. <br /><br />cheers Kim :)frogpondsrockhttp://frogpondsrock.comnoreply@blogger.comtag:blogger.com,1999:blog-4563136033538910586.post-86601009579902243592010-10-08T21:16:37.683+03:002010-10-08T21:16:37.683+03:00I can empathise so much with your post. We've...I can empathise so much with your post. We've been through this too with our 13 year-old son. Life does get better (or does it just get different?), I promise!<br /><br />As for the dentist, find a new one quick. You need to find one who provides RA - relative analgesia. It's a form of gas and air which helps the child relax, but doesn't make him sleepy or anaesthetised. Jonny has this at the dentist and is no trouble at all these days. The RA isn't long lasting, and is easily reversed by just pumping pure air. He has no worries about dentists now, even though they often do lots of work as he has no enamel on his teeth (something which quite often co-exists with another special need, apparently).<br /><br />jomicaAnonymousnoreply@blogger.com