Portrait of Autism #18

'He's not autistic', he tells me, three lines into our conversation. 
It's my son, he's talking about, not his own, the three-year-old struggling to escape from his father's grasp so he can slide down to play on the floor. Not quite his business, you may think. Except of course, that I'm at the special education centre, where autism is everybody's business. He tries to explain, but he struggles, as his English is not what it used to be – he studied at an English language university, as I know from a previous meeting. Max can speak, he wants to say, he's friendly, so he's not autistic. I point out that even now that Max has made so much progress, we're still experiencing quite a few difficulties related to his autism. The fact that if the slightest thing freaks him out at school he refuses to go the next day, and is incapable of telling us why. The fact that he still has temper tantrums that make us worry the neighbours will report us to security, again. The fact that the rare conversations we have with him are only ever about what he's drawing or transportation, who lives where and where we're going to on holiday. Not that I'm complaining: it's wonderful that he can speak at all, the tantrums are a fraction of what they used to be and he goes to school often enough that he's actually learning stuff.

No, the man replies: that's just what every parent goes through. Autism, he adds, is just a name. The words 'triad of impairment' come to my lips. But then, I'm never entirely sure about this classification. I mention that Max, probably like his own son, finds certain kinds of social interactions difficult and that his language development is still quite far behind that of the children – two years younger than him – in his class. So while he's sweet enough when parents and teachers at the center ask him how he is, and while this is a huge achievement compared to how he used to be, it's not something that will help him make friends in the school yard. He's blessed with seriously good looks, so there's always a gaggle of little girls queuing up to play with him, help him. But he's never just going to join a game of football: he doesn't understand the rules, and he wouldn't know how to communicate with those who might explain. So he plays alone.

Among the older kids who go on Saturday mornings, Max is probably the one who has the easiest time both socially and academically. There's a teenage girl who is, as far as I can tell, non-verbal, meaning that she doesn't speak, or very little - although as far as I know she could be a very fluent writer: autism is weird, like that. There's a big boy who seems like a fluent enough speaker, but altogether avoids eye contact, at least when he's at the center. Max must seem like a success story, to parents of toddlers, when compared with those. Max is the kid they'd like their own to be most like. They cannot really project anything more suited to their child's personality: for all his talk of autism being just a word, the father who spoke to me is almost certainly persuaded that his own son will grow up to be like Max, not like the other two. At three, the boy is beginning to speak. He has good eye contact, seems to be fairly well-behaved, and doesn't do a lot of stimming (repetitive movement or noise that autistic people sometimes do). Max at the same age was a whole different story. There's no reason to expect that anyone will grow up to be like Max.

The father of the three year old wants to make his point further – that Max is not autistic – by speaking directly to him, in English. I must have told him three times already that Max's English is very limited, but that he's fluent in both French and Turkish. By this point, another mother has joined in to the discussion of my son's autism. Oh yes, she says, having to learn several languages will mix up his head – that is well known. And then she, too, proceeds to speak to Max in English. In the end, both Max and I were polite. Max offered a few slightly puzzled 'Yes' s to their questions, and I did not say that Max's Turkish was vastly superior to their English. And then we left. 

1 comment:

Anonymous said...

I love reading your writings, especially about Max.

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